The H&L Institute called today and Dr.C is clear booked until January 4th. Which make me stressed but understanding. I know Lily's heart is stable enough to handle waiting, but the gearing up and house preparation's, kids, and husband situation, very stressful. Chris usually stays home with the boys if we are in the hospital longer then a week, but trying to figure out what to do with them during the first week is the stressful part. We have never had Lucas in school before and had to try to work around it. I will not be leaving the hospital at all for the first week. We are prepared for 2 weeks because we are told it usually is a 2 week recovery time for valve replacements. I just need to make sure, there is enough things for Chris to make the boys, because lets face it, unless it has directions on the box, there is no cooking it for my husband. (Sorry honey, I love you, but you are not Mr. Betty Crocker in the kitchen) As many heart parents are aware, the weeks following up to a surgery are nearly as stressful as the surgery it's self....nearly.
Anywho, off track here, consult will take place at 3:45, we will just review what we already know, but it is procedure that has to be followed. Doubt anything has changed in the game plan, but just a refresher for all of us. After the appointment, we will meet over with Juanita and schedule the surgery, which usually takes place within a week after consult. So, I will keep everyone updated. Sorry about the long post previously, I just wanted to get all the medical info into it.
As of right now, Lily is sick, I do believe she has Hand Foot and Mouth, which if any of your children have had it, blah, not lovely at all. Her tongue is covered in white, looks like yeast but there are now little red spots on her tongue. She is running a fever and is VERY cranky, not our normal perky princess at all. I am just hoping she will be ship shape for Christmas. I got her a bunch of princess jewelry, my mom spilled the beans and told me she got her a tutu and a crown, my mom and I can't help but get excited over girly Christmas presents. I am trying to rack my brain for stuff I can get her to bring to the hospital but will still be fun to play with when she is at home. I am thinking about some doll clothes because she loves her baby and loves its' clothes to be changed often. I will wrap up shopping this weekend, ugh, right now we have 6 days until Christmas, I never leave my shopping undo this late, but fiances have been horrid this year, but as we all know, presents don't make Christmas, family does, that is all that truly matters.
If anything changes before the 4th I will of course let everyone know, but I am hoping for a quiet, yet eventful Christmas and New Year. How the heck are we about to ring in 2010? ummm I feel like we were just ringing in the millennium with people going crazy buying all the toilet paper and water from the stores. Who remembers that? Still makes me laugh. Wonder if 2012 will be the same way...better start stocking up now!...just as a precaution.
Love Hugs and Blessings
Jenna
Anywho, off track here, consult will take place at 3:45, we will just review what we already know, but it is procedure that has to be followed. Doubt anything has changed in the game plan, but just a refresher for all of us. After the appointment, we will meet over with Juanita and schedule the surgery, which usually takes place within a week after consult. So, I will keep everyone updated. Sorry about the long post previously, I just wanted to get all the medical info into it.
As of right now, Lily is sick, I do believe she has Hand Foot and Mouth, which if any of your children have had it, blah, not lovely at all. Her tongue is covered in white, looks like yeast but there are now little red spots on her tongue. She is running a fever and is VERY cranky, not our normal perky princess at all. I am just hoping she will be ship shape for Christmas. I got her a bunch of princess jewelry, my mom spilled the beans and told me she got her a tutu and a crown, my mom and I can't help but get excited over girly Christmas presents. I am trying to rack my brain for stuff I can get her to bring to the hospital but will still be fun to play with when she is at home. I am thinking about some doll clothes because she loves her baby and loves its' clothes to be changed often. I will wrap up shopping this weekend, ugh, right now we have 6 days until Christmas, I never leave my shopping undo this late, but fiances have been horrid this year, but as we all know, presents don't make Christmas, family does, that is all that truly matters.
If anything changes before the 4th I will of course let everyone know, but I am hoping for a quiet, yet eventful Christmas and New Year. How the heck are we about to ring in 2010? ummm I feel like we were just ringing in the millennium with people going crazy buying all the toilet paper and water from the stores. Who remembers that? Still makes me laugh. Wonder if 2012 will be the same way...better start stocking up now!...just as a precaution.
Love Hugs and Blessings
Jenna
No comments:
Post a Comment