Well...lets take a step backwards now shall we? Lily has an infection on her cheek, I will take pictuers of it later..I am still reeling at the moment from this information. She would not stop screaming last night, she did not want to sleep and when she did it was very restless, she was tossing and turning. We got up this morning and my husband goes..Jenna have you seen this?" I walked over to her and he turned her head and her cheek was COVERD in puss filled boils. It was under the tape that held her NG down. We pushed meds quickly and then I pulled the tape off...Oh my was that horrible. It smelled attrocious...the puss boils started busrting at once and the smell made you either want to throw up or pass out. I called the pedi immdiatly and they told me to bring her in pronto. We got there and they did the head to toe check over. They couldnt get her o2 sats....suprise suprise, she never holds still long enough for it, so they had to do it the old fashion way by listening and timing her resp etc. SO...after her head to toe exam, and looking at her cheek which was reder then a sunburn that has been slapped...he announced she has a skin infection, he said it is along the line of Infintigo(not spell checking that one) and that what ever we do, if it HAS to be touched, that we have to wash our hands, sanitize them, and then do the same thing afterwards. That is will most likely be highly contagious by contact...GREAT...WHOOO...But then the doc says...Other then that...Shes perfectly healthy....should I be the one to break it to the doctor that whe you tell me she has an infection then annouce that she is perfectly healthy, that is kind of an oximoron?No...I wouldn't do that...he gets paid way to much to be told that he just said something stupid...LOL...So...lets add one more med to her 6 already...YA...Anywho...just wanted to give everyone the scoop...the 411...so...once again..we ask for prayers, because if this get to be bad...well then...you all know it can turn bad quickly. UGH..just one more thing.
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oh my...poor Lily...how did the infection come on so fast? in the pics of her from yesterday her cheek looked perfect!!
we had our apt with the cardiologist on thursday...always such a joy..
we hope this infection clears up quickly and dosnt sread..she dsnt need that on top of everything else..
she is such a beautiful little girl and she looks so big and healthy! do you give her continuous feeds all day or bolous feeds? we're still trying to figure out how to get bela growng...its a slow, stressful process.. but then again i guess all of this is right?! :)
My son has the same reflux issues. And we are on the same three meds you have tried for it, he eats 50ml over 45 mins on the odd hour. Did you ever ask about cylothorax? Teagan had it really bad after his norwood. Your daughter really is beautiful. so does she not have HLHS? Teagan's cheek sometime would smell funny when I took his tape off, but now we use different tape. Well sorry to bore you with my story lol
Heart hugs- Brytten (Teagan's mom)
teagandashpettit.blogspot.com
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