Another Update....Happy Medium

So, lets start with the good news, Lily is now breathing on her own, well ok, with a LITTLE bit of help, shes got the little prongs in her nose, right now the medical term has slipped from my mind...which I am ashamed to say...but anywho...she is thrilled that it is out. She looks wonderful, her feet and hands are warm, finally. She is resting easy for the moment, which is saying a lot seeing she was so cranky before it came out. Ok cranky is an understatement, more like she was thrashing around, she almost pulled her CVP line out of her neck, there was blood all under the tape....but....that is Lily, our high maintenance gal, nothing that is shocking for us.

Now, about the bad news, the warm hands and feet could be a result of her fever, which doesn't seem to be coming down with Tylenol. She has cold clothes on her forehead and ice packs under her armpits. It isn't extremely high but not what we want it to be. She is having PVC's or in short, irregular beats, or skipped beats basically. The doctors are keeping their eyes on it, she has been known to have them, nothing to out of the norm for her after surgery but still not something they like her having.

So...I never did say what the surgeon said....here it goes
They decided to make a call in the OR about keeping her Aortic valve instead of discarding it and replacing it with the Pulmonary like we had originally discussed. He found that the narrowing that wasn't able to be ballooned wasn't as bad as he thought from the echo's and ct-scan, and the heart cath. BUT her aorta is defected and will HAVE to be replaced no matter what. BUT he wants to keep HER valve for as LONG as he can. Of course that is the smart move and everyone agrees with him, he just questions if he made the right call, he even said to us, "I'm not a prophet, we will hope that this will last 3-5 years, like the replacement valve would have, but it could also last only 6 months, and that is when we would realize we didn't make the right judgement call."

So all in all, we are back to square one, but we bought our self more time with HER valve....but inevitably, she will have to have the Ross procedure, just not today. So....it is the Happy Medium, you have to take the bad and make good out of it. Take life's lemons, and make lemonade. That's all you can do. Thank the Lord for another day, for the breath in your lungs, the beautiful visions before your eyes, and the precious sounds that fill your ears. You could not ask for more....or at least I cant. One day at a time, we will climb tomorrows mountains...TOMORROW...

God Bless you all, for staying by our side in spirit, thank you for your unwavering kindness, love, support and prayers. We have no words to tell you all how much you mean to us. Even though many of us don't know each other in person. You are all my extended family. Sending you all our love and unyielding thanks.

Jenna