Life Unscripted: OFF OF BYPASS & GREAT NEWS!!

The Day I Became a Heart Mother

The Day I Became A Heart Mother
One day my world came crashing down,
I'll never be the same.
They told me that my baby was sick.
I thought, "Am I to blame"?
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.
I will not give up on this child.
I will listen to your advice.
I will give my son any chance.
No matter what the price.
I will learn all that
I need To help my baby thrive.
I'll even use that feeding tube.
My child must survive!
Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
As I accept our fate.
When the monitors beep at night,
it serves as my reminder.
How many parents would love that sound.
Tomorrow I will be kinder.
As another Angel earns his wings
,I run to my baby's bed.
I watch him sleep for quite a while.
I bend down and kiss his head.
I cry for the parents whose hearts have been broken.
I look toYou wondering why?
Oh Lord,I just can't know your ways....no matter how I try.
And yet,I trust you hold his life,and guide us through each day.
My mind says savor each moment he's here,
but my heart begs,"PLEASE let him stay"!
From pacing the surgical waiting room,
to sitting by his bed.
From wishing for a good nights sleep,
to learning every med.
From wondering,"Will he be alright?",
to watching him reach out his hands.
With every smile my heart just melts,
despite life's harsh demands.
For all who see that faded line.
I look to them and smile.
You see my child is loved so much.
I would face ANY trial.
That scar I trace with my finger(It's the door to his beautiful heart).
God must have known how much I'd love him(Just as He loved him from the start).
A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.
Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day.......
When I became a"Heart Mother".

~Stephanie HustedMommy to Braeden
HLHS post Fontan
Carepage name: babyhusted

Thursday, December 11, 2008

OFF OF BYPASS & GREAT NEWS!!

She is off of BYPASS....yes you read that right...she is off of bypass, she will be upstairs in a hour. ok...now hold on to your seats....THEY SAVED BOTH VALVES...they just repaired her aortic valve.....they left the pulmonary one intact. I am so estatic, I am completly thrilled...I cant believe it. I dont know where this will leave us for surgeries but you can bet your rear end that I will be asking the surgeon when I see him.I cant even begin to tell you how happy I am right now. This is the best news in a long time for us. She did wonderful, spectacular even, she came off bypass with flying colors. I want to dance around the room and sing happy songs. Our prayers were answered in 10 fold. God bless you all.

6 comments:

Kristin said...: I am so excited for you. Way to go Lily girl....; December 11, 2008 at 12:19 PM
Avery said...: YEAH YEAH YEAH!!! I LOVE when things go better than expected!! That is such great news! That was so fast! I'm so glad they didn't have to mess with the pulmonary valve.. Yeah Lily girl! She's going to look soo much better to you than after last surgery.. She's going to pull through this so quickly!; December 11, 2008 at 1:11 PM
cindyandella said...: YEAH!!! I'VE BEEN THINKING ABOUT YOU ALL DAY LILY!!!! THAT'S WONDERFUL NEWS. WHAT AN AMAZING CHRISTMAS GIFT!!!; December 11, 2008 at 1:48 PM
Jenny said...: Im so happy to read such great news!!! Lily's a fighter and of course all the prayers dont hurt anything either.; December 11, 2008 at 2:35 PM
Megan said...: Praise God!!! I am so glad she did so great.; December 11, 2008 at 4:20 PM
Sarah said...: Im extremely happy!! Lily is amazing.; December 11, 2008 at 5:13 PM