They have finally pulled Lily off bypass (the heart and lung machine). They are checking for bleeding spots. They will make sure to suture all the spots and once that is taken care of, they will start to close her up. We still have a bit of time ahead of us before she comes upstairs or we see her, but the fact that she is off bypass is wonderful news. That was something I have been praying very hard about all day.
I will update again as soon as I hear more news.
Thursday, October 19, 2017
Surgery update-1 & 2
Ok so this blog post is going to be sans pictures because I am posting from my tablet and it won’t allow me to add any.
Today started really early, with us being to the hospital at 5:30 and her being taken back to the O.R at 7:30. The time in between that started as mellow playful fun, this slowly built to anxiety and tears. She begged us not to do this. Daddy gave her a kiss goodbye, while I followed to the O.R in my bunny suit. I held her hand, stroked her hair, and wiped her tears, while she fell asleep. All while whispering to her that I loved her and she would be ok. I said a prayer over her, gave her a kiss, and saw one more tear run down her face, as they escorted me out.
I have to tell you, handing her over as a baby, which one would think would be so much harder than handing an older child over, was actually easier than what I just did this morning. I think a part of me just broke. I don’t know how to put it into words, but listening to her beg to me, not to make her do this, and knowing I had to let it happen. To know you have to put your child’s life at risk to try to save it, is one of the scariest decisions.
So moving on from there, it took them a bit of time to place all her lines. No surprise really, Lily doesn’t have a lot of areas left to access and the ones she does have are really hard to get. So once those were placed they started in on her chest, which also took a while because of all her scar tissue.
The last update we received, they were suturing in her new aortic valve, which is a 21mm, instead of the 19mm she had. This should be the right size for her for adulthood, for her growth pattern. They do still need to close the VSD and the Fistula. So we still have a bit of time ahead of us. I will update when I have another update.
To all that have been praying for us today, thank you. To all that have kept us in their thoughts today, thank you. It means the world to us.
Today started really early, with us being to the hospital at 5:30 and her being taken back to the O.R at 7:30. The time in between that started as mellow playful fun, this slowly built to anxiety and tears. She begged us not to do this. Daddy gave her a kiss goodbye, while I followed to the O.R in my bunny suit. I held her hand, stroked her hair, and wiped her tears, while she fell asleep. All while whispering to her that I loved her and she would be ok. I said a prayer over her, gave her a kiss, and saw one more tear run down her face, as they escorted me out.
I have to tell you, handing her over as a baby, which one would think would be so much harder than handing an older child over, was actually easier than what I just did this morning. I think a part of me just broke. I don’t know how to put it into words, but listening to her beg to me, not to make her do this, and knowing I had to let it happen. To know you have to put your child’s life at risk to try to save it, is one of the scariest decisions.
So moving on from there, it took them a bit of time to place all her lines. No surprise really, Lily doesn’t have a lot of areas left to access and the ones she does have are really hard to get. So once those were placed they started in on her chest, which also took a while because of all her scar tissue.
The last update we received, they were suturing in her new aortic valve, which is a 21mm, instead of the 19mm she had. This should be the right size for her for adulthood, for her growth pattern. They do still need to close the VSD and the Fistula. So we still have a bit of time ahead of us. I will update when I have another update.
To all that have been praying for us today, thank you. To all that have kept us in their thoughts today, thank you. It means the world to us.
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