Lily's Yeast Infection...One week and counting

Yes...TONS of pictures...I know...I cant help but take pictures of my princess!













Austin Loves his sister!

This is the best pic I got of all of them!

Lily LOVES her Daddy!

Ugh...so go figure, my little Lilybug goes and gets a yeast infection....in her MOUTH...go figure... so she is on meds for it, we have been on them for 5 days now...yay...she is almost done, one more day. I am hoping that doesn't stop her from having her Cath done...I am overly nervous and sick to my stomach and not able to sleep at ALL because of all this waiting and the unknowing. I pray she is well enough for the Cath on Wed next week...and if she isn't I pray for calmness for my nerves....

All in all, everything is about the same over here...Lily is ALMOST crawling...but not quite there yet. I will try to get her on video doing her army crawl, it is too cute.

Side note, I am not doing as well as I would like. I went out with my girl friends this weekend kareoking* and well, that was a horrible night. I left my drink unattended for all of I think 3 mins while I ran out to my car for something, everyone went outside for a smoke break...go figure...while anyways we are assuming during that time someone slipped something into my drink because about a half an hour later I was up singing with my friend and passed out.... not the greatest way possible to go down singing...I was taken to the hospital by ambulance and was there for over 5 hours. All in all not how I thought my weekend was going to go, but it is what it is, and needless to say...I am not going out for a LONG while...ugh..

any who...I will update if any thing changes over here like if her cath gets canceled because of her yeast infection.

I need to run...little Miss just woke up and is demanding my attention.

Lily's Heart Drawn by Dr. Rhee

This is Lilyana's heart drawn by her cardiologist. the mirror image of ours. This is the latest drawing, you can see where all the dark scribbles are, that would be our problem area. the circled valve on the right hand side is the valve we are talking about using for a valve replacement. Oh, and to correct my blog below, she can have an artifical valve replacement, but she would out grow of it to quickly and end up having to go back in to have another OHS to do another replacement valve. So, if we are going to use an artifical valve, we want to wait until she is at least 2 or 3 years old I think, so the valve will last a little bit longer until we have to replace it again. This is the reason she will be having OHS for the rest of her life! If you have any questions, feel free to ask me!

The Music of my Soul

Yes, I figured I would open this blog, like almost every other one with pictures. I began to realize that there are very few pictures on here of Lily and her daddy. So here are some new ones. She LOVES her daddy, she has him wrapped around her finger!

It's moments like this that I am going to miss most!

Look...its a bird...its a plane...no...its my SUPER LILY!
Here she was propped up on my legs
She has assumed the position....great...crawling, here we come!

So, as many know, Lily and I LOVE music. Music is what got us through her second surgery, when I couldn't touch her, when I couldn't talk her, the music I played talked to her and calmed her in a way I couldn't. Most of the music that I play for her is Christian music so I believe the Lord Almighty is not only present because of all of our prayers, but he reaches through the music also. Lily and I dance around the living room when she can't sleep. She looks into my eyes while I gaze into hers, and I will sing to her as we sway to the music. She will be my child that shares my passion for music. I pray she has the voice of an angel, one that I was never blessed with, but still pretend that I can sing. I hope she has a voice that will make up for the lack of things that she can not do.

Where am I going with this....sorry...a little side tracked...listening to music...the music I wanted to share with you. If you have seen the CHD Awareness Video Montage I created called "Imagine....Life of a CHD Parent" then you will whom I am refering to. The singers name is Plumb, she released a Lullaby cd back in 2007 called Blink. The most popular song off the cd is called, In My Arms" Beautiful song, but I recently was able to listen to the WHOLE cd. It moved me to tears! There are 2 songs on that touched me to my core, the first one was, God will Take care of you. It is a hymn that many know, but a new style to it that is beautiful. Also the second song is called "My Sweet, My Lovely" I have to say, this is now my song to Lily. I am going to included the Lyrics below.

This is a link to a site where you can listen to a clipit of the song.

http://music.yahoo.com/Plumb/My-Sweet-My-Lovely/lyrics/49809171

I tiptoe
Hush hush...
Pitter pat
Goes my heart...
Your beauty
Your innocence

Joy is found
With every kiss

My sweet, my lovely
My sweet, my lovely
So sweet, so lovely
Close your eyes
Close your eyes
Close your eyes
Close your eyes

I stare into
The bluest eyes
Time stands still in
Your smile
You weren't there
And now you're here

I dreamed of you
But I never know how...sweet and lovely

My sweet, my lovely
So sweet, so lovely
Close your eyes
Close your eyes
Close your eyes
Close your eyes

My sweet, my lovely
My sweet, my lovely
So sweet, so lovely
Close your eyes
Close your eyes
Close your eyes
Close your eyes


Lily now has 2 songs, the one above and the one I made up for her,

Lily's song

Sweet Sweet Lily
My Little Little Lilybug
Precious Lily
Princess Lily
Mama's Lily

I very much recomend buying this cd if you have a chance, if you love music as much as I do, you can not go wrong!

My Talking Little Lady!

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Photo and video editing at www. OneTrueMedia. com....