Sunday, November 2, 2008

I'm Back- Update on Lilyana

Hello Everyone. Sorry it has been a while. I know you all must be wondering how Lily's MRI/MRA went. Well it went as smooth as it could. She wasn't happy when they took her from my arms and walked away from me. She looked at me with her big blue eyes and that little bottom lip poked out and started to quiver, all the while I could almost here her say to me, "Why are you leaving me mommy? Where are you going? Don't leave me mommy." She cried as the nurse walked into the O.R with her and the door closed behind her. I think I am getting to be a pro at this, because I didn't cry this time. I just gave her a kiss and said, "Mommy see you soon sweetheart." Then again this wasn't really a huge thing like everything else she has been through.

I waited for 2 1/2 hours and finally after visiting Stacey and Addison up on the H&L floor, getting breakfast, journaling, and an episode of Charmed and half an episode of ER, I was called back to see my grouchy little girl. And when I say grouchy, I mean screaming at the world she was so mad. They woke her up instead of letting her sleep and she let us ALL know how SHE felt and oh boy was that mad. She tried to pull the IV out of her hand, she flaied her arms all about not wanting anyone to touch her. Only calming to a wimper when I was holding her but starting up once again when she saw the nurse that carried her away from me. My normally calm, easy going Lily, was mad at the world and in a way it was almost humerous to watch seeing she was so relaxed after her heart cath (which is so unlike Lily). She had to make up for it somehow, so she made up for it in ten fold this time around.

We only were there 15 mins after I was called back, she was wide awake and ready to go home. So home we went to see daddy and tell him all about our morning. Tell him she did, and coddle her he did. She snuggled up on daddy and whimpered all day long.

We took the kids trick or treating that night and what an adventure that was. We weren't even out of the house yet and I looked at Chris and asked him if the night was over yet. He shook his head and told me unfortunatly not. Lets just say, Lucas and Austin had been so bad that day we didn't even want to take them trick-or-treating. But once again, we went against our better judgement and went anyways, and since then we have wished we hadn't. I almost (ALMOST being the key word here) want to take the candy and throw it all away, but me being a candy-aholic, I can't quite bring myself to throwing it away. Needless to say, from the moment the kids wake up, until the moment the kids go to bed, the question they continusly ask is, "Can I have candy? I want candy? Can I have candy now?" I just want to take my ears and remove them from my hands because the broken records NEVER stop.

Oh well, the joys of motherhood. I hear that one day I will look back on all of this with fond memories and wishing I could go back. I chuckle as I just remembered the saying, Grandchildren are your reward for not killing your own....ok so I wouldn't go that far but still. The boys can drive me to the edge somedays. If any of you have met my kids, you would understand how much of a handful they are.

Well I am wrapping this up now. We go to see Dr.Cleavland on Friday at 10:45 to get the results of the MRI/MRA and that is when we will find out when her next surgery will be and what exacatly it will entail. So, look for an update then. I might not get it out until later that day, I have to work at 2am until 8am, then come home and get ready for the apt, getting NO sleep because Chris has to work that day. Go me....I am use to no sleep...but my immune system isn't.

Here are pictures from waiting at the hospital and then trick-or-treating














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1 comment:

Unknown said...

Love the pics...they are so cute. I'll be praying for good results for the M.R.I.
Millie and Colin-HLHS
cutiecolin.blogspot.com