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Congenital Heart Defects.com

Congenital Heart Defects.com
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  • Addison
  • Addisons CaringBridge
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  • Jack~HLHS
  • Jaxon
  • Kaitlyn Bree~HLHS
  • Lilyann
  • London
  • Macie-Heart Transplant Survivor
  • Manson
  • Mia-Heart Transplant Survior
  • Owen-HLHS-Waiting for a Heart
  • Pagie
  • Paul Cardall-Heart Transplant Survivor
  • Satiago
  • Scarlett-ToF
  • Taylor
  • Tyson
  • Zach~HLHS

My Blog List

  • Bela Grace
    Transplant 4
    5 months ago
  • The Simmons Family
    Happy Halloween!
    5 years ago
  • In this wonderful life...
    Firsts!
    8 years ago
  • Jaxsons Fight
    Hoarding, buried alive!
    10 years ago
  • Paul Cardall | Living for Eden
    Manfaat Dan Khasiat Madu Bagi Kesehatan
    10 years ago
  • Seventh Smith
    Moving!!
    11 years ago
  • Mimi
    11 years ago
  • *Tyler * Elizabeth * Maddie * Payton * Lexi * Jake *
    New Blog
    11 years ago
  • The Tams Family
    First Day of School 2013-2014
    11 years ago
  • Jack's Journey
    He's 5!
    11 years ago
  • RACHAEL EARL
    Saddle Up | Phoenix Lifestyle Photographer
    11 years ago
  • Kayleigh's Story
    Happy 5th Birthday Kayleigh
    11 years ago
  • Find JOY in the JOURNEY!
    12 years ago
  • Praying for Andie Grace
    Dirty Ghetto Kids(DGK) signing and demo
    13 years ago
  • Scarlett's Heart Blog
    Appreciating Life
    14 years ago
  • Anderson Avenue
    A Jett Update
    14 years ago
  • EOP DREAM
    Happy Birthday Sweet Eden
    14 years ago
  • Skidmore Family
    My Heart Is Full, Ethan's Run 2011
    14 years ago
  • Gracie's Blog
    Our Christmas Card 2010
    14 years ago
  • The Schnepper's
    15 years ago
  • Bring The Rain
  • Our Blog
  • my charming kids
  • The Branton Family

The Day I Became a Heart Mother


The Day I Became A Heart Mother

One day my world came crashing down,
I'll never be the same.
They told me that my baby was sick.
I thought, "Am I to blame"?
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.
I will not give up on this child.
I will listen to your advice.
I will give my son any chance.
No matter what the price.
I will learn all that
I need To help my baby thrive.
I'll even use that feeding tube.
My child must survive!
Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
As I accept our fate.
When the monitors beep at night,
it serves as my reminder.
How many parents would love that sound.
Tomorrow I will be kinder.
As another Angel earns his wings
,I run to my baby's bed.
I watch him sleep for quite a while.
I bend down and kiss his head.
I cry for the parents whose hearts have been broken.
I look toYou wondering why?
Oh Lord,I just can't know your ways....no matter how I try.
And yet,I trust you hold his life,and guide us through each day.
My mind says savor each moment he's here,
but my heart begs,"PLEASE let him stay"!
From pacing the surgical waiting room,
to sitting by his bed.
From wishing for a good nights sleep,
to learning every med.
From wondering,"Will he be alright?",
to watching him reach out his hands.
With every smile my heart just melts,
despite life's harsh demands.
For all who see that faded line.
I look to them and smile.
You see my child is loved so much.
I would face ANY trial.
That scar I trace with my finger(It's the door to his beautiful heart).
God must have known how much I'd love him(Just as He loved him from the start).
A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.
Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day.......
When I became a"Heart Mother".

~Stephanie HustedMommy to Braeden
HLHS post Fontan
Carepage name: babyhusted

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      • Lily's first wedding and mommies thoughts and refl...
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      • My request!
      • Mothers Day Evaluation!
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      • Wanting her home Safe in my arms!
      • Book in Process
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      • The last 2 weeks!
      • What is a CHD?
      • What it means to be a Parent of a CHD child

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Sunday, May 11, 2008

Lily's second video


Make an on-line slide show at www.OneTrueMedia.com
written by Life Unscripted time 8:48 PM
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Life Unscripted
Maricopa, AZ, United States
My thought's, vent's, and raw emotions.
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Lilyana

Lilyana
Every day this girl makes others love her, just by being her sweet kindhearted self. My miracle on earth, that I have been blessed with in this life. Continues to show so many how strong she is. Her heart keeps fighting and so does she.

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