Wednesday, March 18, 2009

Verdict

Pressures are up by another 5%....thank the Lord in heaven it is only another 5%. So we are sitting at about 65%, which is where we were at in September/October of last year. Dr.Rhee knows where it is heading, so he looked at me and said they would be taking her case into the next conference to see when Dr.Cleavland wants to do her next surgery. Then in a month when we go back for her next apt, we will discuss when it will be. As long as it isn't in April, I will be ok with it. April last year was the month that Hades came up from the underworld and lived here on this earth for a month. That was when Lily went into heart failure and we almost lost her. Chris and I would like to spend our anniversary in CA this year, just the 2 of us, we have never been on a vacation together ALONE since we have been married. Our honeymoon lasted all of 2 days because I was so sick, so, time, alone would be wonderful. Not that I wont be calling to check in each day, probably a few times, it will be time to clear my head and reground myself and prepare again. We both know this next surgery will be hard, not as hard as the second one, but harder then the first. They expect us to be at the hospital for at least 2 weeks minimum. To some that isn't bad, but after Lily's 3rd surgery, that is a long time.

So talk to me in a month and I will tell you what the final decision will be. Hopefully May or June. July would be bad because we have to move in July. We will finally be moving into at least a 3 bedroom apartment....if not a 4 bedroom house. Please pray we will become financially situated and ready for that.

All in all, today's apt was uneventful, Dr.Rhee wasn't to thrilled to hear about Lily's sleep apnea episodes, but he said we will look more into it when it comes time to be in the hospital again. Unless it becomes more serious that is. What is, is, tomorrow will come if we like it or not, just what tomorrow brings remains a mystery.

Thank you for all your prayers.
Blessing and Heart Hugs
Jenna

2 comments:

The Simmons Family said...

I can't imagine the frustration of having surgery, after surgery, not knowing that there is an "end" in sight. With HLHS, you know 3 surgeries and that's it... hopefully. That's what we hoped for at least. Owen is classic HLHS. One surgery and we'd be done... HAH. He had different ideas. They always do!

I hope that they will be able to hold off until at least May or June for you. We'll be praying for you Lily.

Greg and Heidi said...

Thank you for contacting me. I just read through your blog for a few minutes with tears pouring down my face. Those pictures are so beautiful and she looks like she is thriving so well. What are all of her defects and what will her next surgery be for?
Thinking of you-
Heidi Skidmore